Riley's Very Successful Year

OK, Riley is not in school yet, but he is doing so great! We've just had genetic testing ran on him due to his PKU...his Phe levels have been extremely LOW for over 3 months. Abnormally low...as in, so low it can do as much damage as his Phe levels being too high. So, he is now on a diet that a 5 month old with severe PKU (which is what they originally diagnosed Riley as) could never be on...he has over 345 mg of Phe per day. Dr. Singh now believes Riley might be a moderate or mild case. Adam believes Riley might suffer from something called HyperPhe, which is where a child is born with Phe levels elevated (between 7 and 10%) but doesn't have true PKU and therefore does not need to be on a severe vegan diet. The reason he believes this is because at birth, Riley's levels were only 7.3%. We are hoping and praying he might possibly have the last option and can have hamburger and hotdogs soon:)

Other than extremely low Phe levels, Riley is flourishing...he is beyond Draik and Regan with everything they did at 5 1/2 months. He loves to stand (yes, stand) and is already scoot-crawling (pulls up, slides forward, pulls up, slides forward- like an inch-worm). He is a very happy baby (so far)...and I'm hoping the teeth start coming in soon- it seems like we've been teething for 2 months with no results. His favorite toy is his horsie...a contraption you sit him in and he bounches...kind of like the door-frame swings, only this is on it's own frame and it's in the shape of a horse and plays "she'll be coming around the mountain". He bounces so hard Adam's afraid he's going to shoot out of it!